I take nearly all of my photographs from the seat of a mobility scooter as I am disabled by a variant of motor neurone disease.
In 2014 MND caused me to retire after 20 years working as a TV cameraman and director. I was 46. The diagnosis is life limiting and has virtually stopped me from walking but it’s brought my image making full circle.
I began my working life as a newspaper photographer and during my TV career I spent time off walking city streets taking photos for pleasure (Fedora Hat below is one from that time). Instead of walking, now I go out on my scooter, often taking two small cameras with a prime lens each and capturing scenes that I find interesting. This gives me a unique perspective – literally and creatively.
Because of my decreasing strength I use mirrorless cameras and sometimes a Ricoh GR compact. I have a very portable mobility scooter called a TravelScoot. When I am noticed now people feel less intimidated than when I was on two feet using a large camera.
I enjoy exhibiting my work, writing and giving talks and presentations about my experiences. I’m also involved in raising money and awareness for neurological organisations and disability issues generally. I’ve been told that what I have to say is inspiring.
I’m currently involved with finishing a project called 26 Miles 4 MND.
If you’d like to contact me please get in touch via my email: firstname.lastname@example.org or just leave a message on this website.
Exhibitions and events:
- 12th to 15th September 2017 – Exhibiton at “Stronger Together”, Tabernacle Arts Centre, Notting Hill, London.
- April 2017 – Guest speaker at Worcester Visual Arts Meet-Up.
- March and April 2017 – Solo exhibition at Worcester Arts Workshop. Organiser quote – “One of our best ever exhibitions. It’s attracted so many people to the venue”.
- March 2017 – Guest speaker for “Rewired” at the Royal Geographical Society. Rewired is an innovative Art / Science event created by Movement for Hope.
- 2016 – Contributor to the 20th anniversary celebration book of the Academy of Medical Royal Colleges.
- 2016 – Exhibited at Neurocreativity for Movement for Hope where the comedian Russell Brand was a guest at the private view.
All words and photography on this site Miles Pilling